Jones Family, 2013
Jen is a graduate of University of Northern Colorado in
Greeley; now living and working in Fort Collins as a full-time Mom; and
full-time office manager. On October 1, 2002, Jen gave birth to Katelina Ruth
Jones Moore, here in Portland. Jen is married to Robert Wayne Moore, aka
"gearjammer", who drives long-haul trucks and manages a Truck Depot.
Rob is an Eagle Scout, and a graduate of Johnson & Wales
University in Denver, where he earned a degree in Food Service Management. Having
worked in the food industry for 20 years, ending as a Sous Chef, Rob has
decided to pursue a career in Brewing.
David, having attended University of Oregon, is in the
process of finding his gifts and career goals. He is a gifted artist, and one
of the bravest, and most generous people that I know.
Judy is a Cook for the David Douglas School District. As a
Senior, Senior at Portland State University, she earned her Bachelor’s Degree a
few years ago.
In 2009 I became aware of my Idiopathic Polyneuropathy. It
started with a silver-dollar-sized area on the ball of each foot, the previous
November. In May of 2009 I was 'shooting' a video of a wedding; by the time the
reception started, I was in so much pain from the fibromyalgia/rheumatism I’ve
had for years, that I asked my Father to take me Home. I was ready to not wake
up the following morning. Within a few weeks, my ability to feel external pain,
and my sense of touch had become absent over 70% of my body. In May of 2011 it
expanded to include the rest of my body, most of my taste buds, and the
function of my gut. After several months of testing at Oregon Health Sciences
University, it was determined that there is no explanation as to the cause of
my neuropathy; and no prognosis for recovery.
I could say that I'm becoming accustomed to my 'new normal'
but it wouldn't be true. Each day is different, sometimes in small ways,
sometimes in larger ways. There are chronic issues that unfortunately have
become a major focus of my attention. I lack the stamina I once had; my
inability to feel pain, and my lack of balance make it foolish to do many of
the activities I've done for most of my adult life. Walking is becoming more
difficult; and I've discovered aspects of pain that I never knew existed. Many
of my chronic aches and pains have disappeared as the nerves become damaged;
but there's a 'hidden' aspect of pain that I wasn't aware of before. My body
reacts in negative ways to pain I can't feel...
I love to draw. I fill my life with music, mostly on CDs...a
lot of worship music that I call ‘brain food’, and selected music from my past.
I do have a soundtrack to my life, mostly provided by the Multnomah County
Library system. Music is playing in my office 24 hours a day. I value hero
stories, and I am a movie addict. For years while working for the City of
Portland, I would take MY vacation in January. For four weeks, I would draw and
watch movies, 3-5 per day. I enjoy reading theology. Not to the point of
understanding the Graf-Belhausen Documentary Hypothesis [if you know what that
means, could you send me an email?]; but from the standpoint of attempting to
understand the weird creatures we are. Favorite theologians: Steve Brown, C.S.
Lewis, Philip Yancey, Frederick Buechner, Tim Hansel, Eugene Peterson, Os
I'm an Elder of the Presbyterian Church, and currently
attend Beautiful Savior Lutheran Church, where I serve as a Stephen Minister.
If you've gotten this far, please send me an email, with “Marty's
Page” as the subject. I'm curious as to whether anyone ever reads this...